My friend Sunday posted a link on her Facebook page about a little girl named Amelia with a rare disorder called Wolf-Hirschorn Syndrome that is being denied a life-saving transplant by Children’s Hospital of Philadelphia because “she is mentally retarded”.
What the hell?!?
I would love to say that it takes a lot to piss me off, but the truth is, I can have a very short temper and quite frankly, this pisses me off.
As a parent who has taken a few of my children to CHOP for various specialists and surgery and knowing a dear friend’s daughter is being treated for her cancer there as well, I.am.appalled.
And, as a parent of more than one disabled child, one of whom is severely disabled, the idea that any institution would tell me or anyone else that my child’s life isn’t as valuable as the next child is not only offensive, but scandalous.
Just who the hell do they think they are?
My stomach is churning over what this little girl’s family is enduring…
knowing their daughter could be saved if not for the fact that judgemental bureaucrats are deciding her fate based solely on dollars and cents.
You can not tell me otherwise.
I don’t care what garbage they think they’re spewing when they say:
“Well, you know a transplant is not forever. She will need another one in twelve years. And then what? And do you have any idea of the medications she will need to take to keep her healthy?”
They are not basing their decision on Amelia’s well-being.
No chance of that.
How could there be????
They (the doctors) think it would be better for Amelia to die than live to be “a burden” later on.
What a huge bunch of crap!
I am telling you as a mother, there is nothing, and I mean nothing, I wouldn’t do to save the life of my child.
And to have anyone ever tell me that my child’s life isn’t worth living…
I do not accept this.
Amelia deserves the right to live.
Her life has value.
If you are sickened by this,
if you agree,
if you feel moved to do something,
please sign this petition
or write the CHOP doctors a letter and tell them what you think of their discriminatory practices. ( firstname.lastname@example.org )
If you are moved to do nothing,
I pray you are never in a position where your child’s life is left in the hands of uncaring, selfish, judgemental bureaucrats who think it’s better for society for your child to die than be a burden.
God help us all.
What have we become?
*If you are skeptical, please read more about Amelia here.